Sarcoidosis And Me
National Sarcoidosis Organization
Awareness is Key - Research is Power - Support is Everything
|Posted by Melany on November 21, 2016 at 4:40 PM||comments (0)|
Please stay tuned as the wesite will be under construction and also an exciting announcement is coming.
|Posted by Melany on April 20, 2016 at 3:10 PM||comments (0)|
For current information, articles and posts in support of Sarcoidosis please check out our facebook page which is updated daily.
Sarcoidosis and Me
During the new Website transition please bare with me while I modify a few things. I will be starting to post more frequently here soon!
Thank you for your support!
|Posted by Melany on April 13, 2016 at 12:40 PM||comments (0)|
As of April 20th, 2016 the National Sarcoidosis Organization website will be changing the name to Sarcoidosis And Me. Offering support, resources, references and awareness. The website will under go a name change and from this point forward it will not operate as the National Sarcoidosis Organization raising funds for research. However the prior postings of the National Sarcoidosis Organization will stay up for referencing and existing members have a choice to continue with the new changes as they wish.
The NSO has filed an intent to dissolve in which it has a period of time before dissolution to make a final decision of it operations. During this time all activities of the NSO must halt and no funds will be accepted and no activities will proceed under the National Sarcoidosis Organizations title.
Sarcoidosis And Me will be kept current with resources and also be adding new features such as a blog. I look forward to your feed back as the changes happen and if there are things you would like to suggest, I am open to new ideas!
|Posted by Melany on February 1, 2016 at 10:50 AM||comments (0)|
For those patients who want to know where others are from and would like to add yourself to this map please follow this link.
|Posted by Melany on December 22, 2015 at 12:35 PM||comments (0)|
To All Members, Supporters and Those Affected By Sarcoidosis,
I would personally like to take this time to say thank you to everyone who has supported a dream which I turned into reality back in 2012. The National Sarcoidosis Organization would not be where it is today without people such as yourselves who have taken the time to share and support both myself and my dream.
Since starting this organization it has helped others in so many ways from providing the much needed funds to do research as well as it has helped raise awareness to the disease. I personally feel blessed to have had the opportunity to work alongside a fantastic board of directors as well as the many people who care.
I hope the support grows through the years ahead and I will continue to work my hardest to keep hope alive!
Happy Holidays and may your New Year shine much needed light on all of you.
|Posted by Melany on April 15, 2015 at 2:05 AM||comments (0)|
Thank you to Toronto, Calgary and Edmonton for supporting our Awareness Month! The National Sarcoidosis Organization is pleased to see the CN Tower, Calgary Tower and High Level Bridge draped in purple and white over the last few days. This is the first time the NSO has promoted awareness in this manner and we are already looking toward 2016's awareness month and what opportunities are available to light up more of Canada in purple and white! Did you happen to see any of the landmarks lit up? Share your story with us! I know this board member actually had tears in her eyes when I saw the CN Tower on webcam and Calgary Tower in person.
|Posted by Melany on March 26, 2015 at 7:10 PM||comments (1)|
In this video from CBC Ottawa, Lee-Ann Bruce, a sarcoidosis patient, is interviewed regarding the hardships of not being able to afford the drugs required for a transplant. The National Sarcoidosis Organization has been approached to add to the interview series. If is for people like Lee-Ann that we are here, to increase awareness and research. With awareness, governments will realize the need to assist those who cannot pay for their own medications. Watch here for what Lee-Ann has to say and a second interview will be coming soon.
|Posted by Melany on February 1, 2015 at 2:05 AM||comments (2)|
April will soon be upon us and this year, if you see a landmark near you lit up in purple and white on April 13, 2015, it is for Sarcoidosis awareness!
Requests have been sent to CN Tower (Toronto), Niagara Falls (Ontario), High Level Bridge (Edmonton), Calgary Tower and BC Place (Vancouver) to have their light display go purple and white on our special day.
If your city or province has a special landmark that has a light display, please email [email protected] with the location and we will get our request in. It is our goal to have purple and white lights in every province!
|Posted by Melany on October 7, 2013 at 11:50 PM||comments (0)|
2nd Annual Sarcoidosis Walk A Thon in Red Deer, Alberta was a success. It turned out to be a beautiful day! Each step counts in raising awareness and funds for research in Canada. Thank you to all who donated and to all the participants who came to the event. Also a huge thank you to all who volunteered to make this event possible. Looking forward to next year's event.