Sarcoidosis And Me
National Sarcoidosis Organization
Awareness is Key - Research is Power - Support is Everything
|Posted by Melany on April 23, 2013 at 11:20 AM||comments (0)|
CBC Radio interview about a personal journey with sarcoidosis.
|Posted by Melany on April 9, 2013 at 9:55 AM||comments (0)|
Left To Right Back - Cheryl Gould, Dawn Smith, Tanya Saban, Dr. Beach, Front Left To Right - Tania Weisgerber and daughters Claire and Annika, Dr. Cherry and Melany Sealy.
On Monday, April 08, 2013, the National Sarcoidosis Organization presented a cheque for $13,000.00 to ...Read Full Post »
|Posted by Melany on March 29, 2013 at 6:20 PM||comments (0)|
In Sudbury Ontario a young woman who has been diagnosed with pulmonary sarcoidosis was interviewed by Cindy O'Neil who is a singer/songwritter and publisher. They put together a podcast https://itunes.apple.com/ca/podcast/vocal-vibes-podcast-cindy/id579006999 as well as a YouTube video http://www.youtube.com/embed/4EfHxpbwjiY .
Please take a look...Read Full Post »
|Posted by Melany on February 12, 2013 at 6:05 PM||comments (0)|
With universal sarcoidosis awareness month fast aproaching in April 2013 we are starting to receive proclamations from our provinces in Canada. Each province was approached by a letter back in December asking for their support by proclaiming April 2013 as Sarcoidosis Awareness Month and on April 13, 2013 people are asked to wear purple and white to show their support. We will post all proclamations that we receive.
It is with great pleasure to announce that...Read Full Post »
|Posted by Melany on December 2, 2012 at 11:45 AM||comments (0)|
This article states that it is safe to get the influenza vaccine if you have pulmonary sarcoidosis. It has been suggested not to recieve the live vaccine which is given by nasal spray as most patients with sarcoidosis have already weakend immune systems. Please contact you doctor or health care provider for more information.Read Full Post »
|Posted by Melany on November 1, 2012 at 10:40 AM||comments (1)|
|Posted by Melany on February 25, 2012 at 5:00 PM||comments (2)|
Sarcoidosis Check List
It has probably been a long road for most to get to this point of diagnosis with symptoms that may have already proven to be debilitating and possibly numerous tests and procedures that were all insignificant. Maybe a harsh cough that wouldn't go away or worsened over time, or other symptoms of pain and general ill health. Sometimes people stumble across diagnosis without major symptoms other than enlarged lym...Read Full Post »
|Posted by Melany on February 10, 2012 at 11:45 AM||comments (2)|
As we all know Canada has a lack of support and awareness about Sarcoidosis and that we seem to have little support from our government.
The National Sarcoidosis Organization has received letters from both the Provincial and Federal levels of government, both stating that we as sarcoidosis sufferers should rely on the Lung Foundation for our support and resources.
It has been looked into and the Lung Foundation shows extremely limited resources for sarcoidosis and it comes to a ...Read Full Post »
|Posted by Melany on February 4, 2012 at 1:50 PM||comments (2)|
Childhood sarcoidosis is not as uncommon as some may thing due to the fact it is commonly misdiagnose such as in adults. It is a multi systemic glaucomatous disorder of unknown causes much the same as adults get.
It presents itself in different ways as it affects different organs and depending on the age of the child it can mimic different disorders. There are two distinct forms of sarcoidosis that exist ...Read Full Post »
|Posted by Melany on January 31, 2012 at 11:20 AM||comments (4)|
As we know there is not much available for Canadian's such as brochures which can be a convenient way to spread knowledge and word about this disease. We are in the process of publishing three brochures and hope to have them ready next month.
Thank you Cheryl Gould and Dawn Smith for the design of ou...Read Full Post »