Sarcoidosis And Me

 

National Sarcoidosis Organization

Awareness is Key - Research is Power - Support is Everything

wanda


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Joined Feb 13 2012
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FEMALE
57 years old
port hope ,ontario
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Sarcoidosis And Me
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About Me

hello;

i was diagnosed in aug 2011 with sarcoidosis..{lungs}..i have two daugther,s both married with children ..i am so worry about my children..dont want them to feel the way i do ...

p.s if anyone would like to chat to me it would be great 

all the best 

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5 Comments

Reply Aholymess
12:18 AM on October 23, 2014 
Hello Wanda, I just joined this site and am fairly new to Sarcoidosis. I had never heard of this autoimmune disease until last May. It affects, specifically, my lungs and my eyes. I'm just trying to figure things out and connect with others who experience the same type of issues, although I recognize Sarcoidosis tends to treat each of us differently. I look forward to learning/sharing/discussing/listening to you and others on this site.
Reply Lynda
10:38 AM on May 6, 2014 
Hi Wanda,

Still new to this site.
However, I was wondering wether or not you still have the Dr. in Oshawa that you mentioned. I live up un Fenelon Falls but I know Oshawa really well.
Does this Dr. specialize in Sarcoidosis is my most important question.
Reply Mary
10:45 AM on April 17, 2012 
Hi Wanda,
Thanks for the welcome!
I see you're from Port Hope, do you have any support in your area? If you don't mind me asking, where do you go for your medical support?
Reply Michelle
10:59 PM on March 26, 2012 
I hope that eventually sarcoidosis will be recognized for what it is-DEBILITATING and very serious. When I was first diagnosed about 15 years ago I was told that I would never get sick with it and was never told to get regular check ups. When I did get sick with it 7 years later I was told that what I have is just a nuisance. Well I am here to say it is much more than that. Doctors need to take it seriously. My whole life has changed because of it. This is a serious disease for some of us.
Reply Lise Ladouceur
2:48 PM on March 7, 2012 
Hi Wanda, I live in Cornwall , Ontario, so not so far from you if you take the 401,, I see the exit for Port Hope but have never been there.
Im sorry you are sick with Sarcoidosis, I do not wish this disease on anyone thats for sure; yet it can always be worse! I would love to correspond with you anytime my email is [email protected]
talk to you soon (Im not sure if these posts are public?)