Sarcoidosis And Me

 

National Sarcoidosis Organization

Awareness is Key - Research is Power - Support is Everything

Michelle


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Joined Mar 26 2012
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FEMALE
53 years old
Blackfalds, Alberta
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Sarcoidosis And Me

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Hi.

I am looking for people with Sarcoidosis to exchange ideas for coping with it.  I have the Chronic form and have been suffering for the past eight years.  I have  lung, lymph gland and skin involvement.

Very tired of the prednisone and weight gain.  Have used Imuran in the past that seemed to work for a couple of years but then all of a sudden my white blood count dropped and I had to discontinue using it.

Michelle

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1 Comment

Reply Melany
11:26 PM on March 26, 2012 
Hello Michelle,
I think you have come to a great place here to help answer your questions. I myself have also been diagnosed with multi systemic sarcoidosis and it has affected my lungs, lymphatic system and skin at the start but in the last year I have now been diagnosed with heart, GI, kidney, bone and pancreatic Sarc. It is extremely frustrating and debilitating and the lack of knowledge in Canada is horrible. I started this organization out of all this frustration because I have been turning to the US for all my support and resources. I have been on prednisone and heart meds along with GI meds now for a while and the doctors really are unsure of what else to do. I have made this organization my mission in life to help people like you get better help here in Canada by raising awareness, and funds for research and resources.
I hope that you can find some answers here an I am glad you joined us here.
I wish you the best with your health and look forward to chatting again.
Stay strong!
Melany