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Forum Home > General Discussion > Petitioning Canadian House of Commons

Posts: 5

From the Canadian Organization for Rare Disorders website, and to sign the petition:

We request the House of Commons Define a “rare disorder” as a life-threatening or chronically debilitating condition or disease with a prevalence in Canada of fewer than one in 2,000 people

Implement a national drug policy in regard to the treatment of rare disorders


• Canadian patients who suffer from rare disorders lack access to clinical trials and new drugs that are available in other countries

• it is essential to ensure that all patients have equal and timely access to therapies for life-threatening and debilitating diseases

• continuing research investment by Canadians in genomics, proteomics, cell therapy and regenerative medicine will lead to the development of new therapies for rare disorders

• it is reasonable to assume that many new therapies for rare disorders will not be brought to market due to the low number of patients relative to the high cost of development

• Canada is one of few developed countries to lack a definition for rare disorders

• policies enacted in other countries to encourage the development of treatment of rare disorders have enabled the development of new treatments for patients

• Canadians would enjoy enhanced health and economic benefits if incentives were provided to assist Canadian innovators in developing and marketing drugs for use in the treatment of rare disorders.

August 29, 2012 at 10:26 PM Flag Quote & Reply

Posts: 11



;) wanda 

September 4, 2012 at 8:07 PM Flag Quote & Reply

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