Sarcoidosis And Me
National Sarcoidosis Organization
Awareness is Key - Research is Power - Support is Everything
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One Great Lecture For Doctors And Patients
louisville.edu/medschool/medicine/grand-rounds/michael-iannuzzi-lecture
This is a very informative lecture from a doctor who has dedicated his career to Sarcoidosis. Please watch this and it will explain a lot of things about Sarcoidosis that are vital.
Posted January 15, 2012 at 12:49 PM
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NORD National Organization for Rare Diseases
www.rarediseases.org/
Here is a helpful link that offers more of an insight to autoimmune and rare diseases such as Sarcoidosis.
Posted April 26, 2012 at 5:15 PM
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Sarcoid Networking Association
www.sarcoidosisnetwork.org/
A great data base of support groups and information.
Posted April 26, 2012 at 5:30 PM
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Health Council of Canada
healthcouncilcanada.ca/news.php
A great place to see how Canada is working on getting better understanding and care for those who need it. Articles, news and publications that are all worth the read if you are as frustrated with the lack of understanding in Canada.
Posted March 15, 2012 at 8:00 AM
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University Of Ottawa Heart Institute
www.ottawaheart.ca/index-en.htm
They are doing CS Cardiac Sarcoidosis Research starting Feb. 2012. Please look at the great information on this site.
Posted January 22, 2012 at 12:05 PM
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Etiology of Sarcoidosis: Does Infection Play A Role
www.ncbi.nlm.nih.gov/pmc/articles/PMC3313528/
This is published 2012 and contains the most up to date information for pulmonary sarcoidosis and the relation to infection. By the Yale Journal of Biology and Medicine.
Posted April 5, 2012 at 12:53 AM
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Cardiac Sarcoidosis
intranet.santa.lt/thesaurus/no_crawl/KARDIOMIOPATIJA/cardiac%20sarcoidosis%20(review).pdf
Very indepth look at CS Cardiac Sarcoidosis and how it may manifest itself and mimic many things. From symptoms to treatment. Written by well know doctors and researchers.
Posted May 12, 2012 at 3:55 PM
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Canadian Lung Association Has Some Info
www.lung.ca/diseases-maladies/a-z/Sarcoidosis-Sarcoidose/index_e.php
Here is some local information.
Posted January 15, 2012 at 9:55 AM
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Health Canada
www.hc-sc.gc.ca/index-eng.php
Our Nations Health Website.
Posted January 17, 2012 at 11:59 PM
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Calgary Based Support And Information
sarcoidosisconnectioncalgary.com/
Great way to meet others with Sarcoidosis in the Calgary area as well as find great resources.
Posted January 15, 2012 at 12:43 PM
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University Of Calgary Medical Research
medicine.ucalgary.ca/research
This University has done a lot of research into Sarcoidosis and has some crutial findings.
Posted January 15, 2012 at 10:17 AM
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Best Doctors
www.bestdoctors.com
A site to help you locate a specialist near you.
Posted February 2, 2012 at 12:04 PM
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SILA The Sarcoidosis Charity
www.sila.org.uk/
An online information and charitable website dedicated to Sarcoidosis.
Posted April 26, 2012 at 5:26 PM
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Sarcoidosis Doctor Data Base
www.sarcoidosisonlinesites.com/dr%20database.htm
Here are a list of doctors we know of as of now and will update as we find out more.
Posted January 15, 2012 at 9:51 AM
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Foundation for Sarcoidosis Research
www.stopsarcoidosis.org
USA based International Support and Information. I find this site very useful.
Posted January 14, 2012 at 11:37 PM
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McMaster University Of Medical Research
fhs.mcmaster.ca/main/index.html
Another Great Canadian Medical University For Research.
Posted January 15, 2012 at 10:21 AM
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Dalhousie Medical School
www.medicine.dal.ca/
Great school for research and medical training.
Posted January 15, 2012 at 10:22 AM
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Sarcoidosis Mortality Statistics
www.nationmaster.com/graph/mor_sar-mortality-sarcoidosis
I know we dont ever want to see this information but it gives insight to how big this disease really is and how critical it can be.
Posted January 15, 2012 at 9:57 AM
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Zazzle Sarcoidosis Awareness Gifts & More
www.zazzle.ca/sarcoidosis+gifts
This is a great site and holds true to its deals and shipping with great discounts on orders that are large. A MUST HAVE!
Posted January 15, 2012 at 5:39 PM
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JSOF
www.jsof.org
USA Sarcoidosis Resource and Support Link
Posted February 2, 2012 at 10:26 PM
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Vitamin D 125
www.vitamindwiki.com/Sarcoidosis+(rare)+problems+when+taking+vitamin+D
Posted March 24, 2016 at 11:24 AM
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University Of Toronto Sarcoidosis Update
www.utoronto.ca/respirology/ADR%20Update%20on%20Sasrcoid.pdf
This offers insight to treatments and how they work. A Canadian Study.
Posted April 23, 2012 at 5:45 PM
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Marshall Protocol
bacteriality.com/about-the-mp/
This is a very indepth look at what Marshall Protocol is and how it works.
Posted February 22, 2012 at 11:33 PM
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Overview Of Sarcoidosis
my.clevelandclinic.org/disorders/sarcoidosis/hic_overview_of_sarcoidosis.aspx
This is a great source of information that gives you more of a patients understanding of the disease and not put in medical terms most have a hard time understanding. Cleveland has one of the best Sarcoidosis research centres.
Posted February 22, 2012 at 11:56 PM
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Cleveland Clinic Treatment Guidelines
my.clevelandclinic.org/disorders/sarcoidosis/hic_sarcoidosis_treatment_options.aspx
Great advice as to prednisone treatments and other types of medications used and what they offer.
Posted February 22, 2012 at 11:40 PM
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Participatory Medicine Organization
participatorymedicine.org/
This site brings together information and resources for the e-patients. It is ment to help mamage your treatment decisions and provide you with better understandings as to what you may be dealing with.
Posted March 15, 2012 at 7:46 AM
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Patients Like Me
www.patientslikeme.com/
Here is another great social networking site to help you dealing with your illness. Easy to join and hosts many members.
Posted March 15, 2012 at 7:40 AM
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e-patients.net
e-patients.net/
This site is full of blogs and resource information for those who suffer from rare diseases.
Posted March 15, 2012 at 7:43 AM
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Here is a Bit of Info about Sarcoidosis
www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001140/
You can never get enough information.
Posted January 15, 2012 at 9:53 AM
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