Sarcoidosis And Me

 

National Sarcoidosis Organization

Awareness is Key - Research is Power - Support is Everything

Members Join Site

Become one of our members and enjoy the information shared.

Our organization will host monthly support groups here in Central Alberta with hopes to bring a web based support group to Canadians soon!

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A Crock of Schmidt
Member
Male
46 years old
About Me

I'm a stay-at-home dad with two terrific kids and a wonderful wife. Formerly I was a geologist but now mostly do the homemaker gig. I was diagnosed with Pulmonary Sarcoidosis in September of 2008 but I've been suffering a range of bizarre symptoms (fatigue, pain) since 2002. The Sarc is apparently gone from my lungs now which is nice but I'm reluctant to get too excited that this is indicative of being cured. I still feel far too blech to be normal. I have started a blog which has my experiences with Sarcoidosis available in all it's shameful glory.

www.acrockofschmidt.com



Aholymess
Member
Female
58 years old
About Me

 



Alan
Member
Male

Alana Shah
Member
Female
38 years old

Alex McKechnie
Member
Male
47 years old

Alice Karenzo
Member
Female

Anele
Member
Female

AngieW
Member
Female
46 years old

Anne Macklin
Member
Female
68 years old
About Me

I've known Mel sealy since she was a youngster.  I hope this site can help people become aware of this frightening & puzzling condition.



Barry Wright
Member
Male
61 years old

Bbygurl
Member
Female
About Me


Bill Aggelakos
Member
Male

Brotherdeek
Member
Male
43 years old
About Me

Diagnosed 2 years ago. Feb 2009.



Buffie Hanes
Member
Female
44 years old
About Me
I have been sick for a year. The pain got worst but mostly to my bottom of me. Were they found cancer. Then the waiting game started. OBG are the hardest doctors to get appointment with. It took 8 months.Then other things went worng with me. The doctors had no idea what was going on with me until I drop my family doctor and got a wonderful Doctor name Dr. Duta. He done a biopsy to my left n...eck and found not onw but three turmors. I then was diagnosed with Sarcoidosis in my right lung. After a year of struggling my doctor tells me I am one of the 10% or so that has 'chronic' sarcoidosis, causing extreme fatigue for which there is no cure. I can sleep 12-14 hrs a day and spend the rest of the day on the couch. I have to force myself to do things that mentally I WANT to do, but my body says no. Talking, even in short sentences, causes a set back. This is very depressing as being busying and talking has always been a very important part of my life - mentally and physically


Caitriona Mc Grath
Member
Female
44 years old

Carmen
Member
Female

Cathy S
Member
Female
54 years old
About Me

I am currently a caregiver/support person for my fiance Ron who has been diagnosed with Sarcoidosis but we have not started treatments yet.  This is all new to us but learning as we go along



Charli Gould
Member
Female
67 years old
About Me

I'm very glad there is finally something happening here in Canada, and I'm excited to be a part of it. I hope everyone who finds this website will join and help to bring awareness of this disease to the rest of Canada.



Charlotte
Member
Female
45 years old

Cher Weisgerber
Member
Female
About Me

My son Chad Weisgerber died May 29, 2012 from Neuro Sarcoidosis.   What a courageous battle!

My brilliant son was taken from me wayyyy to soon but will live on in my heart forever.  I personally  will however, continue to miss your many daily texts Chad.  Now we just talk - no typing needed....luv ya!


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