Sarcoidosis And Me
National Sarcoidosis Organization
Awareness is Key - Research is Power - Support is Everything
Joined Feb 3 2013
55 years old
I am married to the most amazing husband and we have 2 sons..I was told I had sarcoidosis in June 2012.... was very scared..never heard of it..didn't know what to do..live in the mid west. I haven't found a doctor around my area that know much about it....there are some that know a little but they are really not much help so I have had to do a lot of research on my own..I have a lot of pain in my arms and sometimes in my legs,ankles and knees..but I have a doctor who is helping me with my pain control....before that I was taking tons of OTC pain medicine with no relief. I get really tired and sometimes come home on Friday from work and sleep all week-end just to make it through another week..I have an amazing husband who is very supportive and helps me with what ever he can..I hope everyone has a Blessed day..