Sarcoidosis And Me


National Sarcoidosis Organization

Awareness is Key - Research is Power - Support is Everything


Site Owner
Joined Jan 14 2012
General Info

45 years old
Sundre, Canada
Friends (4)

Site Memberships

Sarcoidosis And Me

About Me

Born and raised in central Alberta in the country Melany has always had a huge love for the outdoors and animals. She learned at an early age how to manage things and that hard work really does pay off. She has an older brother who taught her how to be strong and also that you have to fight for what’s yours.

Melany graduated high school and worked many different types of jobs ranging from hair dressing, cooking to the oil patch. Always living life to its fullest and never turning down a challenge as she has run a few small businesses as well.

In 2002 she had her first son and he became the light of her life. She managed to raise him as a single parent, work and build a new home where they still reside today. During that time though she became ill and had a cold that just would not go away. Tests and x-rays were done and it showed that the lymph nodes in her chest were enlarged for a long period which then signaled the doctors to do biopsies of both her lungs and lymph nodes in her chest.

Diagnosis came back as sarcoidosis. Melany was told that most times it would just go away after two years and that there was no concern over it. She carried on not thinking too much of the new diagnosis and neither did her doctor.

In November 2009 she had he second child and felt pretty good. In 2011 she has had a few issues related to sarcoidosis and she is willing to share he experiences with you if you ask her.

It was through all the lack of knowledge, understanding and compassion she received, she started to fight for her rights in Canada to be able to get better help here.

She has been able to get proclamations for sarcoidosis awareness month in April as well as start the organization having it incorporated and registered with CRA and the BBB. There is a website she started for the organization as well, and she has been in contact with many politicians, health ministers across Canada and education facilities and their doctors. It has been a lot of hard work and many sleepless nights but she pushes through in hopes that Canadian’s can get the help, support and knowledge they deserve.

A small town girl with a huge heart, big dreams and a never ending fight for a cure!

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Reply Aholymess
12:21 PM on October 25, 2014 

What a huge endeavor starting this Association must have been. On behalf of myself and all those seeking support, thank you for taking this on. Until I was accepted to this site, in desperation, I joined the Inspire site as well. The experience is more than enlightening (and often overwhelming) , and I find it has become a full time job for me just reading and responding. I can't imagine what keeping up with this site has cost you with your own health, what a huge responsibility, so again thank you.

I hope you're okay and that you are finding support yourself. Take care and I Pray for Blessings of strength and Peace for you...

Irene :~)
Reply wanda
10:45 PM on October 16, 2014 
Melany just wondering i haven,t seen anything up-todate here .hope all is well.wanda
Reply Suzanne
12:52 PM on November 27, 2012 
Thank you for all your hard work on this, Melany.
Reply Tanya Saban
11:26 PM on November 25, 2012 
I am so glad to have met you Melany, I know we will do great things together in the near future and I am so proud to be a part of your team.
Reply Pat H.
6:48 AM on February 4, 2012 
Hi Melany, Sure hope you don't mind if a Yankee joins your group--I did live in Canada for 1 year, when I was in the 7th grade--went to a 1-room school in Courtland, Ontario, East of Sarnia. (can't believe I remembered all that) Whew!! Anyway, I just want to wish you good luck with this project--I'll do what I can to help but probably won't be attending any meetings, a bit too far to drive.

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