Sarcoidosis And Me


National Sarcoidosis Organization

Awareness is Key - Research is Power - Support is Everything


Joined Mar 26 2012
Send a Message
Add as Friend
Flag as Inappropriate
General Info

58 years old
Blackfalds, Alberta
Friends (1)

Site Memberships

Sarcoidosis And Me

About Me


I am looking for people with Sarcoidosis to exchange ideas for coping with it.  I have the Chronic form and have been suffering for the past eight years.  I have  lung, lymph gland and skin involvement.

Very tired of the prednisone and weight gain.  Have used Imuran in the past that seemed to work for a couple of years but then all of a sudden my white blood count dropped and I had to discontinue using it.


Post a Comment


Oops, you forgot something.


The words you entered did not match the given text. Please try again.

You must be a member to comment on this page. Sign In or Register

1 Comment

Reply Melany
11:26 PM on March 26, 2012 
Hello Michelle,
I think you have come to a great place here to help answer your questions. I myself have also been diagnosed with multi systemic sarcoidosis and it has affected my lungs, lymphatic system and skin at the start but in the last year I have now been diagnosed with heart, GI, kidney, bone and pancreatic Sarc. It is extremely frustrating and debilitating and the lack of knowledge in Canada is horrible. I started this organization out of all this frustration because I have been turning to the US for all my support and resources. I have been on prednisone and heart meds along with GI meds now for a while and the doctors really are unsure of what else to do. I have made this organization my mission in life to help people like you get better help here in Canada by raising awareness, and funds for research and resources.
I hope that you can find some answers here an I am glad you joined us here.
I wish you the best with your health and look forward to chatting again.
Stay strong!

Oops! This site has expired.

If you are the site owner, please renew your premium subscription or contact support.